It can be very hard to live with Fibromyalgia, specially I would think being a mother of small children.
My personal path has been a very confusing one. While some of my blood work is a mess other parts are fine. 5 Drs now believe I have fibromyalgia and with a lot or research I can not deny it. Who though wants to think of a life full of pain with no end and no cure? Who wants to accept that?
I have gone through many medications and not even vicodin touches the pain. My next course of treatment is water therapy with a physical therapist.
One of the hardest parts of this illness is that no one can see how much I hurt. There is no wound and often no tests to diagnose it, though I have read that there are now brain scans that can show why those of us with fibromyalgia are different.
Having had a homebirth just 2 years ago that was so very quiet I thought myself to have a high pain tolerance. I might have then but that is no longer the case. A soft touch can cause me to burst into tears. Pain can last weeks and double me over to be sick and unable to eat. Most nights are sleepless and most all morning start out with pain though sometimes there is a lull in the afternoons making it possible for me to get things done. I can’t count on being ok though. Sometimes I can function for weeks and other times I can hardly get dressed and end up in a kid pile trying to get homeschooling done and not cry in front of them.
This is just my experience though and not everyone who has Fibro experiences the same thing. Some are more functional than others, for some medication works. I wish I was one of them. All though suffer an this invisible pain. Please take a moment to think of those you might know who have this. It is real, it is not imaginary, and it is not simply going to go away.
I love giving birth so when I say that Fibro hurts, I am not close to kidding. Unlike childbirth however, there is no point to this pain and there is no end in sight. There is such a sadness that comes with this diagnosis.
Awareness Day May 12th 2012.
I understand what you are going through. I have CFS which is very similar to Fybro. It’s difficult when people can’t see what you are going through. It’s worse when you know someone is saying hi how are you but you know they don’t want to hear how you really are.
People talk down to me and never see the pain.
I hope by spreading the word more people will understand